I've been hearing from multiple people that I need to update this (sorry I'm such a procrastinator). So here I am, at day +105. I made it past day 100 without any complications (wo-hoo!). So now I can get outside and play in the dirt, LOL. How did I celebrate day +100? I drove myself down to Wendy's and got a Coke... with ICE... from a Fountain Machine! Bwa haa haaa. Seriously though... soda is my weakness, and sometimes it's nice to have one out of those bacteria filled machines. So there, LOL. And that evening when Chad got home, I went outside and weeded out one of my flower beds (I did the easy one first, the other one is still a nightmare!). But it was nice to just be normal for a little while (as normal as I ever am anyway, LOL).
Anyway... since my last post, I've had my power port put back in (which is awesome cause Dagen apparently thinks it's a handle for him to grab onto... feels fantastic, LOL), I had a CT scan, and I've had three treatments with Brentuximab. The CT scan apparently looks exactly the same as the one I had in Feb, which is good. No new activity (Yay!). There was a small area that is believed to be either inflammation/scar tissue/calcification... but I've been told it's nothing to worry about. I'm going to continue with these treatments every 3 weeks until I start to have issues with side effects, or until I get them all done. My Dr said that since my last CT "looked so good" they aren't planning on scanning me again until I finish the Brentuximab (unless I start to have symptoms again or my blood work is off). So far this treatment hasn't been too bad... experienced nausea and vomiting after the first dose, so I got a premed of Aloxi (for nausea) before my second dose. That helped for a couple of days, and then I had the nausea and vomiting again. So since I had treatment again 2 days ago (and got the Aloxi again), I'm guessing the nausea will start getting bad again tomorrow evening. I still get tired easily, but the fatigue level with this chemo is much less than previous treatments that I've had.
So... I'm still trucking along... spending time with family and friends when I can... getting mentally prepared to go back to work in a month (I've essentially been a stay at home mom since Dec... with a few extra challenges here and there). Hoping that the side effects don't get worse (from everything I've been reading with the Brentuximab the side effects will start to compile as I have more of it). And hoping that these hot flashes (treatment made me pre-menopausal) are temporary and not permanent. Cause they suck! LOL On a positive note, my hair is growing back (again!). Wo-hoo!
