Alrighty, result time. So since there's apparently a law now that requires test results to be released to the patient in a certain amount of time (wether your doctor has gone over them with you or not) I got the first set of results in a few days. The first to come back was the flow cytometry. Those results made me nervous because in bold type right at the top it said basically that the results weren't conclusive on their own due to poor cell viability. So here I am thinking, oh shit, what am I going to do if they can't confirm that it's still Hodgkin's?! And then I gave myself a pat on the back for refusing the needle biopsy, LOL. If there was crappy results on this one when they had a bigger sample, there's no way they would have gotten what they needed from a needle aspiration.
About a week after those results, the pathology report came back. Thankfully this one confirmed that it's still Hodgkin's, and it also confirmed that it's CD30 positive (which is what I would need for the clinical trial). I finally saw my oncologist to talk about the game plan. Since an Allogeneic transplant is off the table right now as far as I'm concerned, the plan is to go back on Nivolumab (immunotherapy). He said that the clinical trial is not an option right now because they don't have dates for it yet. It's looking like it won't be ready to roll until the beginning of next year at the earliest. So I'll go back on immunotherapy as a bridge to whatever I end up doing in the future. Hopefully I'll respond to it like I did last time and it'll put me back into remission. I had another CT scan done a few days ago of my abdomen and pelvis for a baseline, since the last scan was just of my chest.
It's nice to have a game plan finally. I'm starting back up next Friday, so hopefully the infusions will start doing their thing quickly. It's a 30 minute infusion every four weeks, and I usually tolerate it pretty well. I'll do my best to keep everyone updated regularly. Thanks so much for all the positive thoughts and prayers!! ❤️😃❤️
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